Believing your own nose

Duvet cover collage

I’m on my fourth day at home with not-quite-flu and thought I’d capture a quick post about how complicated self-care can be. I’ll have forgotten once I’m better. Here’s why…

Being able to tune in to what your body is telling you is not the same for everyone. I find it very hard to understand the messages my body sends me (and working to improve this has given great results.)

Let’s take a very simple example. It’s embarrassing to admit, but sometimes I can feel very irritated and not myself for a couple of hours. Eventually I realise that what’s at the bottom of this is that I actually need a trip to the loo. Yes, I just admitted that publicly. When I worked that simple thing out, it made a huge difference. This is especially true in an unfamiliar environment where the loo might be as yet unmapped. Like a baby learning object permanence, if I don’t see a loo, then the concept of loo has vanished from the universe, and I’m left careering aimlessly through corridors like Danny in The Shining towards heaven only knows what.

I’m exaggerating for effect, but it’s a good illustration of how taking care of basic needs can help to manage stress. Learning to factor in loo breaks has made a huge difference to my overall anxiety levels. I can’t rely on my body to send me signals in a timely way that connects to the appropriate action, and so I have to build in exo-reminders.

When I think back to my childhood, I worried about what my body was doing a lot. If I detected something in me was off-kilter, I needed advice about it. It probably looked like hypochondria, but was actually requests for information. Why have two of my toes turned a deathly green? What’s making me wheeze all of a sudden? How is my nose producing all of this… You get the idea. It helps that human biology is fascinating, and miraculous. All children have this natural curiosity about themselves. I suppose some are just better able to connect with the changing weather inside their own system, and adapt to it naturally, whereas others are left hot and bothered without making the connection that their experience would improve considerably if they just took their jumper off.

So here I am, a grown adult, in bed surrounded by lemon drinks and tissue boxes. It took me a full 36 hours to discern that the reason everything in life had suddenly become ten times more difficult was simply that I had a cold (followed by a little period of wondering whether it’s socially acceptable to have a cold and what the correct response might be, but that’s a whole other can of Lucozade.)

However old and wise I get, I’m still alarmed when my body misbehaves, and it takes me a while to connect the dots.

If this resonates with you, my advice is:

  • Learn how human bodies work. You’d be amazed how much something like a basic understanding of the sympathetic nervous system can help you in the throes of a panic attack.
  • Check in with yourself often, using an external reminder if necessary. Are any of your systems misfiring? Is anything painful or uncomfortable?
  • Forgive yourself, over and over and over. It’s really bloody irritating to need this level of micromanagement of your own body. Getting annoyed with yourself won’t help. You’re a warrior for keeping at it every day.

I’d usually link to resources to help readers, but will save that for another day when I’m feeling better. For now, I’m noticing my sore throat and fuzzy head, and going back to sleep.

(See? I’m learning!)

How many lifeboats is too many?

Starting Paper Lifeboat has taken me a long time. Five years, to be exact. One of the things that’s held me back is wondering whether the world really needs yet another autism and mental health blogger. Aren’t there enough of us out there already? Won’t my words just sink like a stone in the churning waters of voices?

This is great fuel for an inner critic. Mine’s been admonishing me that there are other things I Really Should Be Focusing On. Such as the impending void of Brexit, climate change’s implications for our children, and the refugee crisis. Brains are helpful like that; they love to remind you how impotent you are in the face of major, systemic problems. And of course, that impotence is hard to argue against. It taints everything with pointlessness. Before you know it you’ve been under the duvet for three hours. And so the challenge becomes to Do Something Anyway.

So it was that, on Sunday, I took myself off for a walk by the sea. I’d taken this blog down a day after starting it, terrified that telling my story was going to bring Brexit-sized calamity down on myself and everyone I loved (thanks, brain.) Grey seas battered the prom as the soggy January wind blew all over my catastrophising. The weather’s solidarity with my mood made me feel a little better, but soon I was quite cold (having failed to plan my outfit properly for the weather, basing it instead on Just Bloody Well Getting Out For A Walk Before I Sabotage Even That.)

“It is surprising how many unoriginal thoughts we have”

Martine Bachelor

And so I dived into a place I have probably walked past twice a week for many years without stopping – the RNLI gift shop. Inside this teeny space crammed with cheery goodies sat two women whose ages I would not dare to guess at. Dressed in jaunty scarves and woollens, they chatted brightly, Britishly, about the weather and the vagaries of their new kettle (the hot topic of the morning). I was comforted by the tradition of it all, and soon we were chatting away about their new stock.

Making suitably interested noises about their gift cards, tote bags, and travel sweets, I suddenly realised that their branding colours were the same ones as I’d chosen for this site. I found myself staring at the children’s gifts in their navy and orange livery, and when my eyes settled on a lifeboat itself, I started to laugh. I was in a freaking navy and orange lifeboat shop. A shop that, as a U.K. seaside dweller, had been in my peripheral vision for decades. I hadn’t set out to copy them, and yet I totally, if unconsciously, had.

There are very few original ideas in the world. We all soak up influence like sponges, and in turn, influence more than we can understand. Maybe it’s time to accept this and take my little bit of influence out into the world after all. It might not be new, it might not be original. But the vanity of not offering anything at all is a poor excuse not to try.

The following day, I re-published Paper Lifeboat. It has already reached 9 countries and over 600 people have read so far. Turns out there’s a need for more lifeboats. An endless chain of demand and supply, in fact. I’d been demanding something like Paper Lifeboat for so long. Time to get over myself, and supply it.

I’m going to change my colours eventually – it’s the right thing to do (not that the RNLI need protecting from my mighty empire!) As a peace offering in the meantime, I bought some of their lovely gifts.

I think I’m going to need more of that tea…